Blog Archives

***Watch*** as one of our biggest supporters is surprised with a Birthday Gift

  A few weeks ago,  one of Kelly’s  college roommates, Jenna Vandervort, contacted Kelly’s Mother because she had an idea of what she’d like to give Kelly for a birthday gift this year.  Jenna knew that the Wesley Family and BE

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Posted in Paying It Forward

Webster Schroeder High School Students raise money in support of BE uninTIMidated

In December 2016, four Webster Schroeder High School students selected BE uninTIMidated as their focus for their Junior Leadership Project Final. They sold candy canes for $1.00 during Lunch where the candy canes could be sent with a note to

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WAA Softball – Girls 14U Xtreme Softball Team supports BE uninTIMidated

These young Ladies, Coaches and their Families donated over $450 in support of BE uninTIMidated.  Even more importantly, they  wore BE uninTIMidated shirts during Tournaments as well as their League Games to help CREATE AWARENESS about this rare disease.  Thank

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Posted in Paying It Forward, Shout Outs

Rare Disease Day – 2016

    February 29, 2016 marks the 9th annual international Rare Disease Day. On this day every year, organizations around the globe unite their efforts to help bring awareness to the many rare illnesses that do not often see the

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Posted in Featured, Paying It Forward

Life isn’t fair… or is it?

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Life isn’t fair is it? Remember as a kid how unfair it was? You didn’t get picked to be on the team you wanted… you didn’t get to go to the mall with your friends when you wanted… you had

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Posted in Paying It Forward

Mercy Medical Center – Doctor’s Day Video

The fabulous Mercy Medical Center in Baltimore, Maryland released a new video for Doctor’s Day.  See the attached link.  This is a wonderful, compassionate team of people and a cutting edge Medical Center.   http://mdmercy.com/news-and-events/media-relations/news-by-mercy/2014/april/doctors-day?sc_lang=en

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What do I do now? What should I do first? What to do when you’ve been given a concerning health diagnosis.

People find themselves in such a tailspin once given medical news that is, or can be, of concern… and rightly so. You have no idea what to do first. Generally what we’ve seen, as well as what we did ourselves; you listen to the Doctors and go home to try to digest what you were told. So once you’re home and you begin to go through all of the emotions – in between the tears and the worry – you feel like there is something you should be doing. Maybe you don’t, maybe you (feel what I spoke of in my last entry and) trust what you’ve been told. Either way, here is my suggestion to anyone that receives a medical diagnosis of any sort:

Posted in Featured, Paying It Forward

From Heartbreak to Hope; challenging your Doctor and owning your future

I have been giving a lot of thought lately to what responsibilities Doctors should have.  Is there any rhyme or reason to what and how they advise a patient when it is a matter unfamiliar to them?  I am aware

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Posted in Featured, Paying It Forward