Blog Archives

The latest news as of October 18, 2017

Well, since our devastating kick in the jaw last week…  not a lot has happened.  Unfortunately, Mass General did come back and get our hopes up (my hopes up again) with another targeted therapy trial that she thought ‘for sure’

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Sadness… Frustration… Extreme Weight… Sep 2017

Even the clouds were heavy this morning…  It was a morning when it was just so thick and dense and visibility wasn’t great.  Very similar to the space I’m in right now.  Things feel very thick and dense and hard

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An update as of 09/09/2017

Good Morning all.  As you know yesterday we had an appointment with Dr. Tejani here at Wilmot Cancer Center.  It was a good appointment and we walked away feeling better than we have in quite some time. Update on what

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When the weight of the world is on your shoulders…. Aug 2017

and you feel lost and like you’re failing…  you crumble. So maybe it isn’t the weight of “THE” world…  it is really just the weight of “our” world.  My daughter’s world.  My world.  My husband’s world.  When you feel this

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Scan Results Aug 2017

Not the news we wanted to hear today.  The cancer spread even with the chemo.  His abdominal area and the fluid remain unchanged, which is great.  The right lung pretty much remained the same, but the left lung (where the

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Are you there God? It’s me Denise……… Jul 2017

I feel pretty darn alone right now.  I feel so darn helpless.  I am really struggling.  This damn fight is hard.  Harder than anything you might ever be able to imagine.  It is beyond difficult to see your rock crumbling.

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Wayyyyyy overdue update Jul 2017

Hello all…  I feel really terrible and realize that I am way over for providing an update.  I sincerely apologize for that. I think the last you were left with is that Tim was pushing through the side-effects of his

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We Are Hopeful………… May 2017

Our trip to Houston was good and we were surprised at what we learned.  Right out of the gate Dr. Sugarbaker says “Yes, surgery on the pleural lining of both lungs is doable”!!!!  The question following the yes was ‘so

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Crying, Believing, Trusting May 2017

Cry: 1.  to utter inarticulate sounds, especially of lamentation, grief, or suffering, usually with tears. I feel so guilty when I cry, but crying is all I can do when I’m alone.  I am constantly on the phone with people

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5 Year Survivor-versary Apr 2017

What worried us the most 5 years ago before entering the hospital on April 1st, 2012?  I remember quite vividly what used to worry me….  Tim worried me.  Tim always worried me.  He was burning the candle on both ends

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